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Fra EHDN Koordinator Mette Gilling har vi modtaget nyhed om følgende:
Fredag den 8. og lørdag den 9. juni afholdes det årlige HDSA (Huntington’s Disease Association of America) møde. Der vil være live videostreaming så de, der måtte ønske det, kan se udvalgte foredrag på deres computer derhjemme. Husk, at de angivne tidspunkter er Eastern Standard Time hvilket er 6 timer bagud i forhold til Central European Time (Danmark).
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Can’t attend the 27th Annual HDSA Convention?
Then HDSA will bring the Convention to You
This year, for the first time, HDSA will be providing a live videostream of the Opening Ceremony, the Research Keynote and Clinical Trials Showcase, and a selection of workshops so you can participate from your home, or organize your own “satellite convention” – gather together with other members of your local HD community and watch as a group
Friday June 8, 2012
(all times Eastern Standard Time)
12:00 p.m. - 1:30 p.m. Opening Ceremony:
Welcome HDSA Board Chair Don Barr
State of the Society Louise Vetter CEO
We are HDSA -- Why We volunteer
Ted Krull/Shana Martin/Ken Serbin
2:00 p.m. - 3:00 p.m. HD 101 Martha Nance, MD
4:30 p.m. - 5:30 p.m. Detection of Early and Mid Stage Cognitive Problems
Don Higgins, MD
6:00 p.m. - 7:00 p.m. Treatment Options Dylan Wint, MD
Saturday, June 9, 2012
12:00 p.m. - 1:00 p.m. Research Keynote Address Sarah Tabrizi, MD, PhD
1:30 p.m. - 3:00 p.m. HDSA Clinical Research Showcase
Moderator: Ira Shoulson, MD
Panelists: Jane Paulsen, PhD - Predict 2.0
Steven Hersch, MD, PhD - Crest-E
Ira Shoulson, MD - Reach2HD
Bernhard Landwehrmeyer, MD, PhD - Enroll-HD
4:30 p.m. - 5:30 p.m. Alternative Medicine Kathleen Shannon, MD
6:00 p.m.- 7:00 p.m. Psychological Consequences of a Negative Test Result
Carol Manning, PhD
To view the live sessions point your browser to www.ustream.tv/channel/hdsa2012
(Videos of these sessions will be available on the HDSA national website June 25, 2012)
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